Phase 1: Enactment & build · Step 1.14
Set data governance & privacy rules
Months 0–18 · UHA Chief Privacy Officer; HHS OCRDiscuss this step
Every concrete action this step requires, who is responsible, and when it happens relative to enactment.
| # | Action | Owner | When | Trade-off |
|---|---|---|---|---|
| 1.14.1 | Prohibit use of UHP data for law enforcement or immigration enforcement without a judicial warrant. | Congress | Drafting | A warrant requirement protects patients' trust but limits law enforcement access to evidence. |
| 1.14.2 | Create a research data enclave with de-identified data, approved projects only, and public audit logs. | UHA | Year 1–2 | A research enclave enables discoveries but carries re-identification risks. |
| 1.14.3 | Give patients a portal showing who accessed their records. | UHA | Year 2 | An access-log portal increases transparency but adds infrastructure cost. |
| 1.14.4 | Require annual third-party security audits; publish results. | UHA / IG | Annual | Published audits build trust but disclose weaknesses attackers could exploit. |