Set data governance & privacy rules

Months 0–18 · UHA Chief Privacy Officer; HHS OCRDiscuss this step

Task 1.14.2 of 4

Create a research data enclave with de-identified data, approved projects only, and public audit logs.

Who does it

UHA

When

Year 1–2

Trade-off

A research enclave enables discoveries but carries re-identification risks.

Part of: Set data governance & privacy rules

A single payer holds every American's claims history. Strict rules decide who can see it, for what purpose, and how it is protected.

This step changes 1 existing laws, programs, or institutions. See the list.