By NextBestFitPhase 1: Enactment & build · Step 1.14
Set data governance & privacy rules
Months 0–18 · UHA Chief Privacy Officer; HHS OCRDiscuss this step
Pros & cons of this step
Pros
- +One national dataset enables research and fraud detection that is impossible with fragmented payers.
- +Patients get a complete record across providers.
Cons
- −One large target for breaches.
- −Concerns about government access to sensitive health data (reproductive, mental health, substance use).
- Research value vs. privacy.
Trade-off behind each system change
- HIPAA (privacy, security, transaction standards)Stronger protections for a far more concentrated dataset.