By NextBestFitHealth privacy
Health data is shared widely for payment, research, and marketing; sensitive data (reproductive, mental health, immigration) can expose people to harm.
Who's affected
Who is hurt
- People with ongoing or specialist care needs: Widely shared sensitive health information can expose them to harm.
- People needing mental health care: Widely shared sensitive health information can expose them to harm.
- Pregnant and postpartum people and infants: Widely shared sensitive health information can expose them to harm.
- Immigrants and mixed-status families: Widely shared sensitive health information can expose them to harm.
Who gains while it lasts
- Health data brokers: They benefit from health information shared for marketing.
Under your mix of paths
Paths that create or worsen it
Paths that fix or soften it
Using your saved plan. 0 paths picked.Edit all picks
Root causes
- HIPAA gaps
- Data used for commercial purposes
Related costs
Open questions
- Who should be allowed to see a national health dataset, and under what rules?
Caused or worsened by these paths
This problem only matters if one of these paths is chosen.
Fund scribes and AI documentationClinician burnout from paperwork and EHR workChosen
Ambient documentation records visits, raising privacy concerns.
National health record and patient IDRecords don't follow patientsChosen
A national patient record concentrates health information in a large database, creating privacy risks.
Solution paths (2)
Open a path for what it fixes, what it creates or worsens, who gains and who loses, precedents, and how it connects to other paths. See all paths as a decision tree.
Extend privacy protections to apps and data brokers; strict access logs.
- +Health privacy
- −Leaves less complete or useful data
- −Adds paperwork, coordination, or complexity
Patients can opt out of sharing.
- +Health privacy
- −Leaves less complete or useful data